Resources

Interesting Information

This list of books, articles, videos and websites that I appreciate is a wealth of information.

Books:

“When Breath Becomes Air” – Paul Kalanithi, MD
The story of the 36 year old neurosurgeon diagnosed with terminal cancer.
Amazon Link – CLICK HERE

“Knocking on Heaven’s Door” – Katy Butler
The end-of-life struggles of Katy’s Dad whose extended illness would have been very different had “Slow Medicine” been an option.
Amazon Link – CLICK HERE

“The Patient in Room Nine Thinks He’s God” – Louis M. Profeta, MD
Wonderful stories of finding God in the ER. My fave.
Amazon Link – CLICK HERE

“Being Mortal” – Atul Gawande, MD
The beautifully written best seller that opened people’s eyes to End-Of-Life concerns.
Amazon Link – CLICK HERE

“I’ll Have it My Way – Taking Control of End of Life Decisions” – Hattie Bryant
Amazon Link – CLICK HERE

“I Don’t Have Time For This – A Compassionate Guide to Caring for Your Parents and Yourself”
Katerine Arnup PhD, CPCC

Website: lifechangescoaching.ca

“50 Sanity Saving Tips for Caregivers” – Carol Core
How to care for your elderly loved ones without killing yourself in the process.
Website: CarolCARE.net

“How To Get The Death You Want – A Practical and Moral Guide” – John Abraham
A comprehensive manual for those reaching end of life, and their friends, relatives and caretakers.
Website: Upper Access Books upperaccess.com

Articles:

“Great Questions For Anyone” – StoryCorps.org
As heard on National Public Radio, Story Corps encourages storytelling. This list gives some great topics to talk about.
PDF: Great Questions for Anyone
Website: StoryCorps.org

“Cardiopulmonary Resuscitation on Television – Miracles and Misinformation”
– New England Journal of Medicine, June 13, 1996

The storylines in popular Doctor shows paint a very different picture from real life experience. This research paper spells out many important facts to consider.
PDF: CPR on TV – Miracles and Misinformation

“For the Elderly, Being Heard About Life’s End”
– The New York Times, By Jane Gross, May 5, 2008
An article on the case for slow medicine when serving the elderly – CLICK HERE

“We’re Bad at Death: Can We Talk?”
– The New York Times, By Dhruv Khullar, May 10, 2017
An article on aggressive medical care at the end-of-life – CLICK HERE
From the article – 2016 Medicare Statistics:
In the last 6 months of life we go to a physician on the average 29 times.
In the last month of life 50% of us are seen in the Emergency Department.
In the last month of life 33% spend time in the Intensive Care Unit.
In the last month of life 20% of patients undergo surgery.

Faith Traditions and End-of-Life:

Life Support in Judaism
Topic: Can you ever pull the plug? Life support and Jewish Law – CLICK HERE

Catholic Answers Forums
Topic: Life Support in Catholicism – CLICK HERE

The Catholic Spirit
Topic: What About Ventilators – CLICK HERE

National Association of Evangelicals
Topic: Life Support position from the National Association of Evangelicals – CLICK HERE
(Resolution adopted at the 1994 Annual Conference)

Looking for information on Life Support and other Religions?
Use your favorite search engine and enter into the search: Life Support in ___________________ (name the religion)

Videos:

Lucy Kalanithi – Lucy Kalanith, widow of author of “When Breath Becomes Air ” has interviews posted on the website.
PaulKalanithi.com/lucy/

Peg Battin – “TEDMED 2014: Peggy Battin” – Several different talks (including Med Talks) about her husband’s bicycle accident, paralysis and death.
www.youtube.com/watch?v=UtkHnUeNEp4

Phyllis Schacter  – Talks about her husband’s use of Voluntary Stopping of Eating and Drinking (VSED). There are several talks available.
PhyllisShacter.com

Jamie Sarche – “Breaking Down The Taboos About Death” TEDx CrestmoorParkWomen
Talking about death helps us process what happens. Jamie Sarche wants us to start talking about the hard stuff. More talking equals less fear.
https://www.youtube.com/watch?v=SmsYxDvdcYc&t=21s

ABC World News with Diane Sawyer – “The Conversation”
This three generation family meeting can serve as a role model for you and your family in starting the conversation about what is important at end-of-life.
https://www.youtube.com/watch?v=J1r0Xbh0UVo

Websites:

The Conversation Project
Dedicated to helping people talk about their wishes for end-of-life care. “When it comes to end-of-life care, one conversation can make all the difference.”  Great tools to help you to have the “The Conversation”.
– Ellen Goodman, Founder
Website: TheConversationProject.org
Conversation Starter Kit Summary Sheet: TCP Summary Sheet

Compassion and Choices
Nation’s most active nonprofit organization committed to improving care and expanding options for the end-of-life. Thorough resource for Medical Aid-In-Dying and VSED (Voluntary Stopping of Eating and Drinking).
Website: CompassionandChoices.org

Dispatch Health Services
On-demand in home medical services. Dispatches board certified clinicians to your front door, equipped with
all the tools necessary to provide advanced medical care.
303-500-1518
Website: DispatchHealth.com

The Grillo Health Information Center
A non-profit organization providing the following services:
– Free confidential research for your personal health questions
– Receive the latest, most trustworthy medical information
– Make informed decisions about your health care and treatment
– Access alternative paths to health
720-854-7293
Website: GrilloCenterHealth.com

Stanford University Medicine – The Letter
A “Dear Friends and Family” letter template will help you complete the Seven Vital Tasks of Life Review. Your loved ones will cherish your letter and you will have the mental peace knowing that you completed an important life task.
Website page link:  https://med.stanford.edu/letter/friendsandfamily.html

Remarkably, although Slow Medicine takes more time, perhaps, than Fast Medicine, its apparent inefficiency is actually efficient, because it leads to the right diagnosis and the right treatment

Dr. Victoria Sweet

Author, "God's Hotel: A Doctor, a Hospital, and a Pilgrimage to the Heart of Medicine"